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Hope For Aussies With Von Hippel-Lindau Syndrome
39yearold mum Amelia, and her two sons Xavier and Leo, are living with a rare and debilitating condition, Von HippelLindau Syndrome.
The family is now fighting to get a new miracle treatment, which only one person in Australia can afford, to be put on the PBS to make it affordable for all.
#Health #PBS #Medicine
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