Rowan is a 3yearold girl living with Recessive Dystrophic Epidermolysis Bullosa, a devastating and lifethreatening genetic skin disorder. EBRP funds research aimed at treating and curing Epidermolysis Bullosa.

About EB Research Partnership
ebresearch.org
Founded in 2010 by a group of dedicated parents and Jill and Eddie Vedder of Pearl Jam, EB Research Partnership is the largest 501c3 nonprofit funding research to find a cure for Epidermolysis Bullosa (EB). EB is a group of devastating and lifethreatening genetic skin disorders that affect children from birth.