Joe Boon is turning 30. It’s a milestone for anyone, but particularly for Joe and his family, who carry a rare genetic and degenerative condition that carries a life expectancy of just 37. Three out of five siblings including Joe have Friedreich's Ataxia, which gradually attacks the neuromuscular system. Not diagnosed until their teens and early 20s, the family have battled to cope with the implications of the disease each one handling it differently.

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