Welcome to our first video! In this video you will meet our amazing daughter Avynn. Avynn was clinically diagnosed with Cornelia de Lange Syndrome at birth in Nov 2020. Avynn was dependent upon a Trach and feeding tube for half of her life. I hope you enjoy seeing what daily life was like raising a medically complex child. Avynn unfortunately passed away in January of 2022. Stick around to see more videos as we share our family's journey to find hope in the midst of life's trials.

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INSTAGRAM | @lifeafteravynn