Related CSF Leak diagnosis journey videos...
(more below the line!)
○ CT Myelogram Plan: • Procedure 2 BOOKED // 2 CT MYELOGRAMS...
○ Q & A on patching, etc: • Q&A // Blood Patch Update, Service Do...
○ Day Before Myelograms & Patching: • CT MYELOGRAMS + PATCH GAME PLAN // Fl...
○ CT Myelogram Procedure Day VLOG: • Day of CT Myelogram // Procedure VLOG
If you HAVE POTS and SUSPECT A LEAK, watch this:
○ POTS vs. Spinal CSF Leaks: • POTS and Spinal CSF Leaks // What Eve...
○ Main WEBSITE: mommingwithmigraine.com
○ Daily Life: INSTAGRAM.com/mommingwithmigraine
SOME RECENT VIDEOS…
○ Getting Myself out of a Slump on Camera: • *SHOWING* How I Get Myself OUT OF A S...
○ Backwards Pants: • BREAKING FASHION BOUNDARIES // 5 Reas...
○ Does AI “get” chronic migraine? • Does AI Understand the REALITY of Liv...
○ The 4 stages of a migraine attack: • FOUR STAGES of a MIGRAINE ATTACK // T...
○ Migraine Mom Trigger Management TIPS: • Migraine Mom TIPS // Managing MIGRAIN...
○ Toddler Communication for Migraine Mamas: • MIGRAINE MAMA vs. TODDLERS // How I u...
○ Baby Names: • BABY GIRL NAMES we LOVE but didn’t us...
○ Playing Tag with Buddy: • How I PLAY TAG with Service Dog BUDDY...
CSF Leak Diagnosis & Treatment (2023):
○ Suspecting my “migraines” are a Leak: • Am I MISDIAGNOSED?! // CSF Leak Sympt...
○ 48hour Flat Test Vlog: • VLOG + TIPS: The 48hour FLAT TEST //...
○ Brain Leak MRI Findings! • SHOCKING NEWS // My OLD Brain MRI Sho...
○ Learning I'm getting treatment! • CONFIRMED: A BLOOD PATCH is in my Fut...
○ Wavering on the path forward: • "I think I was wrong" // WAVERING on ...
○ Choosing blood patch vs CT myelogram: • My Spinal CSF Leak BIGGEST NEWS YET!...
○ What is a blood patch? • What is a BLOOD PATCH? // Showing Why...
○ What the patch procedure was like: • My First BLOOD PATCH PROCEDURE // Wha...
○ Blood Patch Recovery weeks 02: • Blind BLOOD PATCH RECOVERY // Part 1:...
○ Blood Patch Recovery weeks 24 • RECOVERY PART 2 // The Symptoms that ...
IMPORTANT POTS, Leaks, & IIH KNOW THE DIFFERENCES
○ POTS vs. Spinal CSF Leaks: • POTS and Spinal CSF Leaks // What Eve...
○ A POTS Episode Explained: • PlaybyPlay of a POTS EPISODE // Is ...
○ Advice for new POTS patients: • POTS TIPS // Advice for New POTS Pati...
○ Symptoms of HIGH vs LOW Cranial Pressure: • Symptoms of HIGH vs LOW Cranial Press...
○ Part 1 of POTS Care Q&A: • POTS CARE Q & A // Dysautonomia, IIH,...
○ Part 2 of POTS Care Q&A: • Part 2 of POTS CARE Q&A // On POTS Sy...
○ Advice for Patients: • ADVICE FOR PATIENTS // How to Advocat...
○ On Invisible Illness, pros/cons: • INVISIBLE Illness // The TRUE Pros & ...
○ What Fainting Feels Like: • What Does FAINTING Feel Like? // POTS...
COMORBIDITY THINGS:
○ Joint Hypermobility: • JOINT HYPERMOBILITY // Showing a POSI...
○ NUCCA & CCI: • NUCCA for IIH // Fixing C2 NECK PAIN ...
○ Fascial Counterstrain (for IIH & more): • FASCIAL COUNTERSTRAIN for IIH // A Th...
High Cranial Pressure (IIH):
○ I was Misdiagnosed “chronic migraine” for 5 years: • I was MISDIAGNOSED // After 5 years o...
○ Diamox for IIH: • Prescription DIAMOX for IIH (acetazol...
○ Getting OFF Diamox: • IIH + No More Brain Pressure Medicati...
○ Passing the Tilt Table Test: • PROGRESS CHECK // AtHome Tilt Table ...
Medical Gaslighting/Diagnosis Roller Coaster videos:
○ Dr. Phil Show Medical Gaslighting: • I Went On DR. PHIL! // Medical Gaslig...
○ Dr. Phil Q&A: • DR. PHIL SHOW Q&A // Traveling with 2...
○ CSF Leak Diagnosis Update: • CSF Leak Diagnosis UPDATE // My Neuro...
○ After Medical Gaslighting: • After MEDICAL GASLIGHTING // The doct...
○ Sick Day Vlog & Canceled CSF Appt: • Quick SICK DAY VLOG, & RIP to my shor...
○ Being Refused a Spine MRI: • Diagnosis Story UPDATE // No MRI...ti...
○ Infant Potty Training (EC): • Infant Potty Training! // Our EC Expe...
○ Baby Potty Training 1 yr Update: • Infant Potty Training 1 YEAR UPDATE /...
○ Infant Tongue Tie Release: • Infant TONGUE TIE RELEASE Story & Sym...
○ My Adult Tongue Tie Release: • Adult TONGUE TIE RELEASE Experience /...
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NOTE: Though I talk about medical topics, nothing on my channel is meant as medical advice (for all statements, past or future). I am a patient sharing my personal experiences, but I am not a doctor nor am I medically trained. My channel is for entertainment and community only.
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