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brain fluid is leaking... I'm rolling with the punches // pre-CT Myelogram Procedure for CSF leak

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Momming with Migraine

Related CSF Leak diagnosis journey videos...
(more below the line!)
○ CT Myelogram Plan:    • Procedure 2 BOOKED // 2 CT MYELOGRAMS...  
○ Q & A on patching, etc:    • Q&A // Blood Patch Update, Service Do...  
○ Day Before Myelograms & Patching:    • CT MYELOGRAMS + PATCH GAME PLAN // Fl...  
○ CT Myelogram Procedure Day VLOG:    • Day of CT Myelogram // Procedure VLOG  

If you HAVE POTS and SUSPECT A LEAK, watch this:
○ POTS vs. Spinal CSF Leaks:    • POTS and Spinal CSF Leaks // What Eve...  

○ Main WEBSITE: mommingwithmigraine.com
○ Daily Life: INSTAGRAM.com/mommingwithmigraine


SOME RECENT VIDEOS…

○ Getting Myself out of a Slump on Camera:    • *SHOWING* How I Get Myself OUT OF A S...  
○ Backwards Pants:    • BREAKING FASHION BOUNDARIES // 5 Reas...  
○ Does AI “get” chronic migraine?    • Does AI Understand the REALITY of Liv...  
○ The 4 stages of a migraine attack:    • FOUR STAGES of a MIGRAINE ATTACK // T...  
○ Migraine Mom Trigger Management TIPS:    • Migraine Mom TIPS // Managing MIGRAIN...  
○ Toddler Communication for Migraine Mamas:    • MIGRAINE MAMA vs. TODDLERS // How I u...  
○ Baby Names:    • BABY GIRL NAMES we LOVE but didn’t us...  
○ Playing Tag with Buddy:    • How I PLAY TAG with Service Dog BUDDY...  

CSF Leak Diagnosis & Treatment (2023):
○ Suspecting my “migraines” are a Leak:    • Am I MISDIAGNOSED?! // CSF Leak Sympt...  
○ 48hour Flat Test Vlog:    • VLOG + TIPS: The 48hour FLAT TEST //...  
○ Brain Leak MRI Findings!    • SHOCKING NEWS // My OLD Brain MRI Sho...  
○ Learning I'm getting treatment!    • CONFIRMED: A BLOOD PATCH is in my Fut...  
○ Wavering on the path forward:    • "I think I was wrong" // WAVERING on ...  
○ Choosing blood patch vs CT myelogram:    • My Spinal CSF Leak BIGGEST NEWS YET!...  
○ What is a blood patch?    • What is a BLOOD PATCH? // Showing Why...  
○ What the patch procedure was like:    • My First BLOOD PATCH PROCEDURE // Wha...  
○ Blood Patch Recovery weeks 02:    • Blind BLOOD PATCH RECOVERY // Part 1:...  
○ Blood Patch Recovery weeks 24    • RECOVERY PART 2 // The Symptoms that ...  


IMPORTANT POTS, Leaks, & IIH KNOW THE DIFFERENCES
○ POTS vs. Spinal CSF Leaks:    • POTS and Spinal CSF Leaks // What Eve...  
○ A POTS Episode Explained:    • PlaybyPlay of a POTS EPISODE // Is ...  
○ Advice for new POTS patients:    • POTS TIPS // Advice for New POTS Pati...  
○ Symptoms of HIGH vs LOW Cranial Pressure:    • Symptoms of HIGH vs LOW Cranial Press...  
○ Part 1 of POTS Care Q&A:    • POTS CARE Q & A // Dysautonomia, IIH,...  
○ Part 2 of POTS Care Q&A:    • Part 2 of POTS CARE Q&A // On POTS Sy...  
○ Advice for Patients:    • ADVICE FOR PATIENTS // How to Advocat...  
○ On Invisible Illness, pros/cons:    • INVISIBLE Illness // The TRUE Pros & ...  
○ What Fainting Feels Like:    • What Does FAINTING Feel Like? // POTS...  

COMORBIDITY THINGS:
○ Joint Hypermobility:    • JOINT HYPERMOBILITY // Showing a POSI...  
○ NUCCA & CCI:    • NUCCA for IIH // Fixing C2 NECK PAIN ...  
○ Fascial Counterstrain (for IIH & more):    • FASCIAL COUNTERSTRAIN for IIH // A Th...  

High Cranial Pressure (IIH):
○ I was Misdiagnosed “chronic migraine” for 5 years:    • I was MISDIAGNOSED // After 5 years o...  
○ Diamox for IIH:    • Prescription DIAMOX for IIH (acetazol...  
○ Getting OFF Diamox:    • IIH + No More Brain Pressure Medicati...  
○ Passing the Tilt Table Test:    • PROGRESS CHECK // AtHome Tilt Table ...  

Medical Gaslighting/Diagnosis Roller Coaster videos:
○ Dr. Phil Show Medical Gaslighting:    • I Went On DR. PHIL! // Medical Gaslig...  
○ Dr. Phil Q&A:    • DR. PHIL SHOW Q&A // Traveling with 2...  
○ CSF Leak Diagnosis Update:    • CSF Leak Diagnosis UPDATE // My Neuro...  
○ After Medical Gaslighting:    • After MEDICAL GASLIGHTING // The doct...  
○ Sick Day Vlog & Canceled CSF Appt:    • Quick SICK DAY VLOG, & RIP to my shor...  
○ Being Refused a Spine MRI:    • Diagnosis Story UPDATE // No MRI...ti...  

○ Infant Potty Training (EC):    • Infant Potty Training! // Our EC Expe...  
○ Baby Potty Training 1 yr Update:    • Infant Potty Training 1 YEAR UPDATE /...  

○ Infant Tongue Tie Release:    • Infant TONGUE TIE RELEASE Story & Sym...  
○ My Adult Tongue Tie Release:    • Adult TONGUE TIE RELEASE Experience /...  


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NOTE: Though I talk about medical topics, nothing on my channel is meant as medical advice (for all statements, past or future). I am a patient sharing my personal experiences, but I am not a doctor nor am I medically trained. My channel is for entertainment and community only.

DISCLAIMER: Links included in this description might be affiliate links. If you purchase a product or service with the links that I provide I may receive a small commission. There is no additional charge to you! Thank you for supporting Momming with Migraine so I can continue to provide you with free content each week!

posted by gasreggt