The full episode of Staying Connected Season 2 Episode 3, featuring Ashley Rose Marisch.

Ashley Rose Marisch was diagnosed with VEDS, or Vascular EhlersDanlos Syndrome, in 2017, after previously being diagnosed with FMD, or fibromuscular dysplasia. Her sister, Allyson Jane, ultimately continued researching their family’s experience and history and pushed for the genetic testing for VEDS that led to Ashley Rose, Allyson Jane, and their mother, Dawn, to be diagnosed. Allyson Jane passed away in 2020 of a ruptured aortic dissection. In this episode, Ashley Rose shares her experience getting diagnosed, and how she copes with the diagnosis and the loss of her sister.

Find more information about VEDS, including support groups and medical webinars, at TheVEDSMovement.org.

This podcast is not associated with The VEDS Movement or The Marfan Foundation. The views, information or opinions in the blog, podcast, and vlogs are solely those of the individuals involved and do not represent the opinions of The Marfan Foundation. The Marfan Foundation is not responsible and does not verify for accuracy any of the information contained in them nor does the information constitute medical or other professional advice or services.