Our vision is a future in which all rare conditions are understood and treated.

Raremark is for patients, parents, and caregivers. If you’re affected by a rare condition, Raremark is where you can learn and share tips, life hacks, and realworld experiences. It’s the type of wisdom that can only come from experts like you, who deeply understand what it’s like to live every day with a rare disease.

On our YouTube channel, you can find videos on all aspects of rare disease: from what it is like to live with a condition daytoday, to a specialist's advice to families who are considering taking part in research.

If you'd like to be interviewed about your experiences living with a rare disease contact us on [email protected].