Lara Bloom is the President & CEO of the EhlersDanlos Society and responsible for globally raising awareness of rare, chronic and invisible diseases, specialising in the EhlersDanlos syndromes, hypermobility spectrum disorders (HSD) and associated symptoms and conditions.
In March 2020 Lara was appointed a Professor of Practice in Patient Engagement & Global Collaboration at Penn State College of Medicine (USA) marking a decade in her field of expertise.
Lara manages coordinated medical collaboration, raising funds for research and focusing on the global progression of EDS and HSD and supports specialists in the field by offering her experience as a leading patient expert in rare and invisible diseases.
Lara is an inspirational keynote speaker who has spoken at multiple conferences, policy meetings, corporate and fundraising events and academic lectures worldwide, representing the patient voice with clear, concise, emotive and impassioned experience.
