Patient KC by Joanna Ferbrache, Cardiologist by Bryan Assata, Gynecologist by Star M
Emergency Physician by Kazia Steele, Medical Oncologist by Eric Wolfgang Nelson
Review (and KC's medical oncologist): Dr Pavlos Msaouel
Production Assistants: Erin Goodenough, Nick Brown
KC's YouTube Channel ► @katiekickscancer_kidney
Chromophobe and Oncocytic Tumor Alliance: https://kidneycoa.org/
National Institute of Health, Katie Coleman: https://ccr.cancer.gov/news/article/a...

Katie received her second opinion and treatment at MD Anderson Cancer Center and her surgery was done at the National Cancer Institute, where 2 other confirmed metastatic oncocytoma cases are documented. Her case report to publish in a medical journal is currently pending.

Big Data Paradox
@HemeReview indepth with Dr Msaouel ►    • The More Data You Have, The Further Y...  
Cancer Patient Speaks Candidly With Her Physician ►    • Kidney Cancer Patient Speaks Candidly...  
@BigEmus Behind The Scenes ►    • What Was Growing In Her Body Was Said...  

Katie's Story (playlist) ►    • Katie's Story  

Japanese Translation and Dub: Chihaya Hanai @rasha1m833
Japanese Voice KC: Kasumi Seki

Spanish Translation and Dub: Cenzontle Voices, Inc CDMX
Spanish Narration: Jerry Meza
Spanish Voice KC: Jahel Morga
Spanish Review: Dr Araceli Morga Vera

Portuguese Translation and Dub: Cenzontle Voices, Inc CDMX
Portuguese Translation: Zyanya Ponce
Portuguese Narration: Santiago Álvarez
Portuguese Voice KC: Gabriela Pellicia
Portuguese Review: Lenin Sagrero

Vietnamese translation and subtitles by Cao Nguyên

Music by R Prince, performed by Chubbyemu
Additional Music by @Lifeformed ► https://lifeformed.bandcamp.com
Some Images by Getty Images

Timestamps:
0:00 A Woman ‍♀ Had A Headache Lasting 3 Days
0:05 KC is a 28 year old woman ☝ presenting to the emergency room
0:30 At the Urgent Care
0:58 Over the next few months
1:18 Abdominal pain
2:06 The anticipation of an imaging modality
3:03 Back in the emergency room
4:12 A phenomenon of nature
5:06 An implication of heterogeneity
5:43 The mitochondria is the powerhouse of the cell, but something's wrong
6:41 Searching online cannot give you important contextual metadata
7:59 How do you know your plan is the one for you?
9:14 A powerful clinical reasoning tool
10:53 If you hear hooves think horses not zebras, but play telephone and people may hear ????
12:32 Presenting☝ to the emergency room
13:04 This is called 'treatment resistance'

These cases are patients who I, or my colleagues have seen. They are deidentified and many instances have been presented in more depth in an academic setting. These videos are not individual medical advice and are for general educational purposes only. I do not give medical advice over the internet.

References:

Metastatic renal oncocytoma. https://www.ncbi.nlm.nih.gov/pmc/arti...

Renal oncocytoma, yet another tumour that does not fit in the dualistic benign/malignant paradigm? https://www.ncbi.nlm.nih.gov/pmc/arti...

Oncocytoma and metastatic potential: myth or reality? https://link.springer.com/article/10....

Renal oncocytoma: clinicopathological study of 166 patients. J Urogenital Pathol 1991141–52.

Classification of tumours. Pathology and genetics of tumours of the urinary system and male genital organs. Lyon: IARC Press, 2004

Oncocytoma. https://www.pathologyoutlines.com/top...

Chromophobe Kidney Cancer. https://www.pathologyoutlines.com/top...

Immunohistochemical analysis for cytokeratin 7, KIT, and PAX2: value in the differential diagnosis of chromophobe cell carcinoma.
https://pubmed.ncbi.nlm.nih.gov/17210...

The Big Data Paradox in Clinical Practice. https://www.tandfonline.com/doi/full/...

A Causal Framework for Making Individualized Treatment Decisions in Oncology. https://www.mdpi.com/20726694/14/16/...

There is Individualized Treatment. Why Not Individualized Inference? https://arxiv.org/abs/1510.08539

Causal inference and the datafusion problem. https://www.pnas.org/doi/10.1073/pnas...