Hi everyone! This is my chronic illness story part 2! If you haven’t seen part 1, I’ve linked it below. It will be very helpful in understanding this video and there’s a lot of information you should know before watching this one.

I’ve listed resources and every single one of my doctors below. I hope this helps.

Chronic Illness Story Part 1:    • How Ehlers Danlos Syndrome Affects My...  

Instagram @stateofkait:   / stateofkait  
TikTok @state.of.kait:   / state.of.kait  
Business inquiries: [email protected]
____________________________________________________

Timestamps:
00:00 intro
01:20 My diagnosis/background
02:05 How am I doing?
04:40 How a diagnosis changed my life
08:50 My diet
12:02 How I got my doctors
15:26 Low dose Naltrexone
20:35 Grief stage
21:51 Update on pain
22:56 PRP or prolotherapy
25:59 Kinesiology tape / KT tape
27:50 Sodium for POTS
29:18 Compression socks
30:15 Sibo remedies
33:10 Exercise
35:11 Outro

Resources:
EDS Society Providers List: https://www.ehlersdanlos.com/healthc...
The Guardian article about Alissa Zingman https://www.theguardian.com/society/2...
Prism Spine and Joint https://prismspineandjoint.com/
Vitassium electrolyte capsules https://rstyle.me/+yI0xl4HAI9I00Ny_Rr...
Trace Minerals https://rstyle.me/+GmTsUoEjfQ8vrW7b_...
KT Tape https://www.kttape.com/products/ktta...
Hydrant no sugar added electrolytes: https://www.drinkhydrant.com/blogs/ne...
Pax vape for healthier cannabis consumption https://rstyle.me/+P8RXPRgO7sGcwuYpBo...

My doctors:
hEDS: Alana Wright at Prism Spine and Joint, Maryland https://prismspineandjoint.com/drwri...
Allergist/immunologist: Dr Jonathan Corren, Los Angeles (he is FANTASTIC and very well versed in EDS and comorbidities) https://www.correnmd.com/
PCP: Dr Martha Galvan, https://doctor.webmd.com/doctor/marth...
Cardiologist: Dr. Ram Dandillaya http://www.drdandillaya.com/
POTS specialist: Dr Peng Sheng Chen https://www.cedarssinai.org/provider...
Physician who diagnosed me: Marta Long, MD
https://www.martalongmd.com/
Rheumatologist: I don’t have a rheumatologist but Kailey told me that Dr. Daniel Arkfeld is one of the best Drs in the country who specializes in rare disease that affect women
Gastroenterologist: Dr. Seper Dezfoli https://www.cedarssinai.org/provider...
Paint management: not my doctor, but this is a recommendation from Kailey. Dr. Benjamin Taimoorazy in Beverly Hills is one of the most skilled pain management doctors https://www.bhmigraineandpain.com/pro...
Neurologist: Dr. Shalini Mahajan is a neuromuscular neurologist at Attune Health. Not my doc, but a recommendation from Kailey https://attunehealth.com/ourstaff/sh...
Orofacial Pain Specialist: Dr. Jennifer Buchanan, San Rafel (very familiar with EDS, clinically diagnosed me with trigeminal neuralgia) https://www.jenniferbuchanandds.com/
PRP / Prolotherapy: Dr Gloria Tucker, her whole practice is based around helping people with hypermobile joints and she is very familiar with EDS https://www.gloriatuckermd.com/
Vivid Visions Optometry (diagnosed me with BVD): https://www.vividvisionsoptometry.com/
Therapy Lab, diagnosed me with ASD: https://www.therapylab.com/clinicians...

FTC: This video is not sponsored and it is not meant for children.