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Victor and Libby Boyce: Remembering Cameron and Epilepsy Awareness

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The Squeeze

This week the Lautners have the honor of sitting down with Victor and Libby Boyce, parents of child star Cameron Boyce, who passed away in 2019 from SUDEP (Sudden Unexpected Death in Epilepsy). They offer an inside look at the incredible life Cameron led and the legacy he left behind. They explain how and when epilepsy became part of their lives and how Cameron wasn’t considered epileptic until his second seizure. This is one of their many frustrations with the medical system, which failed to arm them. Their main message in coming on the podcast today is to take an epilepsy diagnosis seriously. There is a lack of information about epilepsy, despite there being so many different types and it being one of the most common neurological conditions. They were never even informed of SUDEP, the complication that took their son’s life. They talk about The Cameron Boyce Foundation, with the mission of raising awareness of epilepsy, discuss their grieving process, share what the outpouring of love has felt like, and offer advice on what to say to someone who has lost a loved one.

Cameron lives on through his sister, parents, friends, and The Cameron Boyce Foundation. We urge other people of influence to speak out if they suffer from epilepsy, and encourage you to check out the foundation to learn more about the disorder: https://www.thecameronboycefoundation...

00:00 Intro
04:14 Welcome Victor and Libby
05:13 Who Cameron was and where it all started
12:00 Corbin Bleu helping Cameron
23:35 When did epilepsy come into the picture?
25:35 Frustration with the medical system
29:28 The Cameron Boyce Foundation
33:38 Being at higher risk of epilepsy
37:59 Asking other people with epilepsy to speak up
44:10 Grieving process
56:26 What has the outpouring of love been like?
59:20 What to say to someone who’s suffered a loss

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posted by Malijakavm