Emmy has Vici syndrome, a very rare and lifelimiting genetic disorder. Sadly, there is currently no cure or effective treatment and most affected children lose their lives at a very young age. Action Medical Research is funding research to better understand and target the cellular processes that go wrong in Vici syndrome – and to test existing drugs that could help.

Read Emmy's Story: https://action.org.uk/research/family...

http://www.action.org.uk

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