Angelina's story gives devastating insight into the impact of childhood dementia.

Learn more, get involved and donate here: https://www.childhooddementia.org
If your family is impacted by childhood dementia, we have information for you here:
https://www.childhooddementia.org/for...
If you are a health professional and would like to learn more about childhood dementia, please visit:
https://www.childhooddementia.org/pro...
If you are a researcher and would like to learn more, get the latest information and collaborate with other researchers, please visit: https://www.childhooddementia.org/joi...

You can learn more about childhood dementia here: https://www.childhooddementia.org/wha...
And by watching our 3 minute explainer:    • What is Childhood Dementia? Childhood...  

WHAT CAUSES CHILDHOOD DEMENTIA? Childhood dementia is caused by 100+ rare genetic disorders. Sadly, most children with dementia die before reaching adulthood. Half die before their 10th birthdays. Childhood dementia is progressive. The brain is damaged more and more. Children progressively lose skills they’ve already developed such as the ability to write, read, learn, talk, walk and play. Their brains also lose the ability to keep the body functioning properly and, eventually, to keep the body alive.

IS THIS NEW? No. Sadly, the genetic conditions that cause dementia in children are not new. They are each individually rare, however, and have traditionally been researched and responded to individually and in silos. Bringing these disorders together into a collective group to spark awareness, action and solutions is new. Childhood Dementia Initiative launched in 2020 to do this.

WHAT DOES CHILDHOOD DEMENTIA INITIATIVE DO? We can find solutions for kids like Angelina. Think of childhood dementia like cancer before action and research started to improve quality of life, survival and prevention. We're working to:
1. Transform research. This includes driving a shift away from researching just one disorder at a time to researching multiple disorders concurrently and sharing expensive infrastructure between research projects to speed up progress);
2. Improve care and quality of life for children with dementia. This includes amplifying family voices about what they need and engaging with health providers and professionals to build understanding and improved support for families who report it's difficult to get the care they really need;
3. Advocate and build awareness so that childhood dementia becomes a health priority. The fact that you're watching this video is a step forward. Nothing will change if no one knows about childhood dementia.

Join us at:
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