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Patient Story: Living with Ehlers-Danlos Syndrome

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RareBeacon

This is the full interview with Pippa, sharing her experiences living with the rare disease EhlersDanlos Syndrome (EDS). This interview was filmed as part of Findacure's crowdfunding campaign, raising funds for rare disease patient advocate support.

If you would like to support our work with patient groups, why not donate to Findacure via http://uk.virginmoneygiving.com/chari...

posted by telancang1u