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Our Heroes

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Unfixed Community

This month we turned the cameras away from our own stories to talk about the people who are influencing and nurturing us in our Unfixed lives. We purposefully left the question openended. Care and kindness come in many forms. Globally we are seeing acts of care and compassion through peaceful protest and activism to address the history of racism and inequity in our system. In our communities, citizens are wearing masks not to protect themselves, but the vulnerable around them. In our personal lives, we care for our loved ones through kindness, presence and a commitment to showing up and listening, even when things get tough.

Doctors, friends, spouses, siblings, parents, children, acupuncturists, medical aids for people with chronic illness, the list of our caregiving heroes is long and diverse. But whether they wear a stethoscope around their necks or a wedding band on their ring finger, these people all have something in common they show up and they show they care. One doesn't have to be an expert in chronic disease to be "the sun, the water and the air" to our own becoming.

As we all search our hearts for ways to bring more kindness and care into our communities and each other, let's listen to our Unfixed members and their heroes share their own hardearned wisdom.

ABOUT:
On February 1, 2020, twenty people living with chronic conditions began a 24month journey together. They all received an email with a prompt, a question or an idea to help them explore a topic around living Unfixed. Then they set up a tripod and recorded their response with their smartphones. Some are living with the aftermath of a cerebral stroke, others are struggling with autoimmune disease or daily, debilitating migraines. These honest, unpolished moments are at the heart of the unfixed state the highs, the lows and everything in between.

On the first of each month, they will receive a new prompt. Subscribe to our channel to stay uptodate on the monthly community videos premiering exclusively here on YouTube!

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Thank you to our partners and collaborators for believing in us, bringing healing and advocacy into your own circles and helping us grow our audience to create a more informed and empathic world. We can't control what curve balls come our way in life but we can decide what to do about them. We are endlessly inspired by the people and organizations choosing to bring positivity, awareness, and love into some of the most challenging of places. Please take the time to learn more about all of their extensive efforts within the chronic illness communities Invisible Disabilities Association, Our Odyssey, Solutions for a Better Day, Inspire, Health Story Collaborative, VeDA, InvisiYouth, Beyond My Battle, and MdDS Foundation.

posted by Chonak