In the UK, a rare disease is classified as a disease that affects 1 in 2000 people. Cold Urticaria is estimated at 0.05% of the global population (Möller, 1996), which works out as 1 in 3,876,500 people. Visual Snow Syndrome is estimated at 2% of the UK (Kondziella, 2020) which works out as 1 in 1,344,400 people. Hypermobile EhlersDanlos Syndrome is estimated between 1 in 5,000 and 1 in 20,000 people.

*Calculations based on population data 25/02/2022

Visual description: Max is sat in front of their wall of pride flags wearing a black tshirt with rainbow printed BSL hand letters that say genderqueer across two lines. They are wearing a grey wrist splint on their left hand, a fake gold septum ring, glasses with orange lenses, and their hair is split dyed green and black.
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