Many of you know our daughter, Juliana, received a bone marrow transplant on April 29, 2016 from her birth mother who lives in Belarus. Within days of the transplant Juliana started filling up with fluid, her capillaries were leaking and she was bleeding internally...a LOT. Since April 22, 2016 through September 20, 2016 Juliana received 98 transfusions. This is in addition to the 120 transfusions she has received up to that time.

Scans shows fluid building up around Juliana's heart. She has been on TPN (food in a tube) for over six months. My wife and I think that may have caused some or all of the fluid to accumulate. A procedure was done, in the hospital, in early September to remove the fluid around Juliana's heart. 800ml of fluid was removed.

Almost, immediately Juliana started having SEVERE pain in her back. We found out fluid started building up around her right lung. In late September 2016 1.8 LITERS of fluid was removed from around Juliana's right lung.

Juliana is scheduled to have another PET scan (one month early) on September 27, 2016 to see if they can see why the fluid is building up (other that what we think caused it). The PET scan will, also, show IF Juliana has relapsed...again. My wife, Tammy, and I are SO worried but do NOT think she has relapsed as she has NO signs of cancer like the prior seven times she has had cancer.

Please follow her journey at   / angelsforjuliana250289225091998