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Hanging out with Our Teenage Son with SYNGAP1 - Multiple Disabilities

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Kelli & Kyle

How we spend a typical weekend day with Kyle, our teenage son who has #syngap1 (a genetic diagnosis resulting in multiple disabilities). If there are elevators where we’re going, Kyle’s happy! Which means we’re happy!

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Kyle was born in 2006 and has SYNGAP1, a rare genetic disorder that causes epilepsy, global developmental delays, intellectual disability, autism, etc. I share more about his diagnosis in this video:    • What is SYNGAP1 | Rare Genetic Disord...  
#syngap1
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Order my COLORING BOOK for Special Needs Moms & Caregivers here: https://amzn.to/3hVa6kt

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LEARN MORE ABOUT SYNGAP1:

https://www.syngapresearchfund.org/

posted by houffennypf