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Glioblastoma (Brain Cancer) - BRUTALLY Honest Caregiver Experience

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AJWriting

My dad was diagnosed with a brain tumor (glioblastoma) in June 2022. Here’s my experience as his caregiver alongside my mom.

0:00 Introduction
0:21 Glioblastoma diagnosis
4:56 Radiation and Temodar Treatment
7:08 The first major seizure
9:04 My first real experience as a caregiver
10:44 Glioblastoma recurrence
12:35 Awake craniotomy
14:50 Rehab
15:55 Caregiving at home
26:06 Another setback, another seizure
28:20 The decision to enroll in hospice care
30:32 Guilt, doubts, and regrets
34:40 An update

Please reach out in the comments if you’re in a similar situation and want to chat. I am by no means an expert, but I do have experience navigating the health care system, understanding treatment options, and dealing with the difficulties that come with a loved one having brain cancer. Thanks for watching, and I wish you all well!

posted by lollampogf7