The journey to a diagnosis of an EhlersDanlos syndrome (EDS) or hypermobility spectrum disorder (HSD) is often a long and challenging road. In this month of May, EDS and HSD awareness month, let’s explore why this is. Is it as hard as we are led to believe? And why are there so many barriers to finding out if you are indeed hyper mobile or have EDS?
We are going explore:

What EDS and HSD and their subtypes are and how they manifest, including hypermobility and other symptoms

What else can be experienced alongside?

Are neurodivergent people more likely to be hypermobile or to have an EDS?

How can you take care of yourself ?

How can we support children in school and at home?

AsIAm is Ireland's Autism Charity. We are committed to making sure autistic people nationwide are given the same chance for education, employment and participation in their community.
Find out more here:
https://asiam.ie/'>https://asiam.ie/
Subscribe to our newsletter:
http://eepurl.com/dJnuCX'>http://eepurl.com/dJnuCX


0:00 Intro
4:45 Katie Kerley Overview
5:48 What is EhlerDanlos Syndrome?
8:09 Collagen
9:28 Common and Rare Symptoms of EDS
15:12 Zebra Factor How Rare is EDS?
18:07 EDS Signs in Children
20:41 Is EDS a Spectrum?
21:56 Autistic Health
27:05 Getting an EDS Diagnosis
30:45 EDS Sensory Processing
32:29 Potentially Harmful EDS Treatments
42:43 Common Misconceptions about EDS
46:35 School and Work Supports
53:25 Angel's Story
1:03:14 Self Advocacy
1:10:37 Fatigue
1:11:53 EDS Pain is not Growing Pain
1:14:10 Coping Mechanisms for EDS
1:19:41 Medical Gaslighting
1:21:33 I Think I Have EDS?

AsIAm is Ireland's National Autism Charity. We are committed to making sure autistic people nationwide are given the same chance for education, employment and participation in their community.
Find out more here:
https://asiam.ie/'>https://asiam.ie/
Subscribe to our newsletter:
http://eepurl.com/dJnuCX'>http://eepurl.com/dJnuCX
Consider donating to help support our work:
https://asiam.ie/'>https://asiam.ie/supportourwork/don...




Let’s look at how to enable meaningful occupations and maintain joy in life.
Intro: